I received a letter from my best friend from childhood, Tara. Tara has a daughter, Grace, with Rett Syndrome as well as 4 other children. Rett Syndrome is a unique developmental disorder that is first recognized in infancy and seen almost always in girls, but can...
When I started to think about the article for Exceptional Parent and what I was going to write about, it seemed overwhelming; only because there is so much to write about when we think of Grace. Luckily, Tara and David do not need yet a wheelchair accessible...
This seems like a completely random subject for a post, but part of the beauty of having your own blog is that you can satisfy random thoughts such as this. Who I am specifically targeting with this question, “How do you do it?” is parents of children...
I just spent a week back in wonderful Rhode Island visiting my family and friends. These visits home are always filled with emotion, joy, fun and most of all reflection. When you only see your parents once a year, it is strange to see how much they’ve aged. I...
It’s going to be difficult to write this post because there are so many things to write about, so many emotions, so many stories and countless lives affected, all because of Grace. Grace has Rett Syndrome. If you are like most of us, you don’t know what...
